S3:E6, Traveling with PAH: How Experience Builds Confidence and Freedom, with Jenna

In this episode of Rarely Typical, I sit down with my friend Jenna to talk all things traveling with Pulmonary Arterial Hypertension (PAH). When you live with a rare disease, the idea of traveling can feel overwhelming — from packing medications and managing oxygen, to handling airports and unexpected flares. But over the years, both Jenna and I have learned how to make travel not only doable but genuinely enjoyable again.

We share how our confidence has grown through experience, the lessons we’ve learned the hard way, and how we’ve each adapted our routines so we can continue exploring the world. You’ll hear our best practical tips for preparing for trips, managing hiccups on the go, and setting yourself up for success when things don’t go as planned.

If you’ve ever thought, “I wish I could travel, but my illness makes it too complicated,” this episode will remind you that with the right preparation, intentionality and mindset, it’s absolutely possible.

What You’ll Learn:

* How to prepare for travel with medications, oxygen, and medical equipment

* What to communicate with your doctor before travel

* How experience helps reduce fear and builds travel confidence

* Tips for finding joy and flexibility when things go off-plan

Follow Jenna on Instagram at @travelingwithoutboundaries

Disclaimer: I’m not a medical professional, just a professional patient. Rarely Typical is based on my personal experiences and is not intended to be medical advice. Always consult with a qualified healthcare professional for any medical concerns or decisions.

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