Ep. 98: From the Inside Out- My husband's journey with a neuroimmune condition

I invited an adult with a neuroimmune condition onto the podcast to discuss his experience and provide listeners with some insight on what children with PANS/PANDAS and other neuroimmune conditions may not have the words to describe. This special guest happens to be my husband, Ed. This episode is part 2 in a 3 part series. Next week, you'll hear me discuss my experience as a caregiver.

In this episode, you’ll learn:

• What a child with a vulnerable nervous system may long for you to know, but doesn't have the ability to tell you verbally
• What kind of caregiver response really helps (sometimes) 
• How the Dysregulation - Shame Cycle feels

Read a summary or the full transcript on my website: https://robyngobbel.com/neuroimmuneinsideout

Resources
PANDAS physician network https://www.pandasppn.org/
Neuroimmune Foundation https://neuroimmune.org/
ASPIRE: The Alliance to Solve PANS and Immune Related Encephalopathies https://aspire.care/
Monster in Me Documentary: https://www.themonsterinsideme.com/

The Guided Journal will ship to your mailbox on September 21 2026 if you pre-order NOW!

You can pre-order anywhere you buy books online. If you'd like a personalized signed copy, pre-order from my local independant book store!

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If you pre-order TWO or more copies of the new Guided Journal for Raising Kids with Big, Baffling Behaviors, you'll get a FREE ticket for Baffling Behaviors LIVE in Richmond, VA!  A four-hour training for parents and caregivers- plus you'll get lunch, snacks, coffee, and some great take-home materials.

You can also SPONSOR this event! Help my team and I really nurture and care for burned out parents.

RobynGobbel.com

We are waiting to read your application for the Baffling Behavior Training Institute's Immersion Program for Professionals! 

RobynGobbel.com/immersion for every detail about the program you could be curious about! 

Grab a copy of USA Today Best Selling book Raising Kids with Big, Baffling Behaviors robyngobbel.com/book

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Sign up on the waiting list for the 2027 Cohorts of the Baffling Behavior Training Institute's Immersion Program for Professionals robyngobbel.com/Immersion

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Over on my website you can find:
Webinar and eBook on Focus on the Nervous System to Change Behavior (FREE)
eBook on The Brilliance of Attachment (FREE)
LOTS & LOTS of FREE Resources
Ongoing support, connection, and co-regulation for struggling parents: The Club
Year-Long Immersive & Holistic Training Program for Parenting Professionals: The Baffling Behavior Training Institute’s (BBTI) Professional Immersion Program (formerly Being With)