Rare Care Podcast
EN211 episodes
healthfitnessmedicine
Rare Disease Advisor's Rare Care Podcast features exclusive interviews with experts and stakeholders from the rare disease community.
Episodes (211)
An Interview With Huntington Disease Patient and Advocate Lauren Holder of Help...
Rare Care Podcast
May 19, 202512:26pending
An Interview WIth Antonella Favit-Van Pelt, MD, PhD, on Neuromodulation to Treat...
Rare Care Podcast
May 15, 202515:45pending
An Interview With Joyce Kullman, Executive Director of the Vasculitis Foundation
Rare Care Podcast
May 8, 202512:10pending
An Interview With Chris Lewis, Son of Famous Comedian Jerry Lewis
Rare Care Podcast
May 8, 202513:36pending
An Interview WIth Lisa Butler, CEO of the GBS-CIDP Foundation
Rare Care Podcast
Apr 30, 202512:35pending
An Interview With MDA Patient Advocate Donavon Decker, Winner of the 2025 MDA Le...
Rare Care Podcast
Apr 28, 202513:20pending
An Interview With MDA 2025 National Ambassador Lily Sander
Rare Care Podcast
Apr 15, 202514:52pending
An Interview With Duchenne Expert Katherine Mathews, MD, of the University of Io...
Rare Care Podcast
Apr 11, 202511:26pending
An Interview With Generalized Pustular Psoriasis Expert Arash Mostaghimi, MD
Rare Care Podcast
Apr 7, 20259:10pending
An Interview With Clinical Hematologist and Professor Dr. Luke Chen
Rare Care Podcast
Apr 1, 202516:05pending
An Interview With John Anderson, MD, Expert on Hereditary Angioedema
Rare Care Podcast
Mar 17, 202510:33pending
An Interview With Retired NFL Athlete and Amyloidosis Patient Advocate Art Still
Rare Care Podcast
Mar 13, 202517:05pending
An Interview With Heather Landau, MD, on the Latest Therapies for Amyloidosis
Rare Care Podcast
Mar 6, 202517:04pending
An Interview With Hereditary Angioedema Expert Dr. Timothy Craig
Rare Care Podcast
Feb 27, 202514:20pending
An Interview With Dr. Sangeetha Venugopal on the relationship between smoking an...
Rare Care Podcast
Feb 20, 202512:09pending
An Interview With Andrea Renzi, a Patient Advocate for Women Affected by HDFN
Rare Care Podcast
Feb 12, 202512:16pending
An Interview With Dr. James Bussel on Fetal and Neonatal Alloimmune Thrombocytop...
Rare Care Podcast
Feb 5, 202513:28pending
An Interview With Rigoberto Garcia, Executive Director of the Hemophilia Foundat...
Rare Care Podcast
Jan 31, 202515:25pending
An Interview With AATD Patient Kristin Hatcher of the Global Liver Institute
Rare Care Podcast
Jan 24, 202513:17pending
An Interview With Terry Jo Bichell, PhD, Founder and Director of CombinedBrain
Rare Care Podcast
Jan 17, 202515:32pending
An Interview With Erin Collins, Founder of the Chasing Rainbows Foundation
Rare Care Podcast
Jan 6, 202515:24pending
An Interview With NMOSD Expert Dean Wingerchuk, MD, of the Mayo Clinic
Rare Care Podcast
Jan 2, 202510:28pending
An Interview With Beloved Huntington Disease Activist Jimmy Pollard
Rare Care Podcast
Dec 27, 202412:18pending
An Interview With Clinical Psychologist Rosalind Kalb, PhD, of Can Do-MS
Rare Care Podcast
Dec 18, 202413:56pending
An Interview With Huntington Disease Patient Activist Tanita Allen
Rare Care Podcast
Dec 16, 202411:17pending
An Interview With Jean Elwing, MD, a Pulmonary Hypertension Expert at the Univer...
Rare Care Podcast
Dec 3, 202413:47pending
An Interview With Payel Gupta, MD, on the Importance of Social Media in Healthca...
Rare Care Podcast
Nov 27, 20249:08pending
An Interview With Sandy Siegel, Founder and President of the Siegel Rare Neuroim...
Rare Care Podcast
Nov 22, 202416:11pending
An Interview With Anastasia Vishnevetsky, MD, MPH, on the Use of Cannabis to Tre...
Rare Care Podcast
Nov 14, 202416:33pending
An Interview With Ignacio Muñoz-Sanjuan, PhD, President and Founder of Factor-H
Rare Care Podcast
Nov 5, 202415:41pending
An Interview With Amy Case, MD, Chief Medical Officer of the Pulmonary Fibrosis...
Rare Care Podcast
Nov 4, 202416:31pending
An Interview With Steve Van Wormer, Cofounder and Director of the Phaware Global...
Rare Care Podcast
Oct 21, 202412:03pending
An Interview With Victor Test, MD, Chair of the Pulmonary Vascular Disease Progr...
Rare Care Podcast
Oct 16, 202412:50pending
An Interview With Drew Harris, MD, Expert on Black Lung Disease
Rare Care Podcast
Oct 9, 202412:56pending
An Interview With Mahesh Desai, PhD, of the Luxembourg Institute of Health
Rare Care Podcast
Sep 25, 20249:48pending
An Interview With Karin Hoelzer, DVM, PhD, Senior Director of Policy and Regulat...
Rare Care Podcast
Sep 18, 20249:45pending
An Interview With Susan Ward, PhD, Founder and Executive Director of the Collabo...
Rare Care Podcast
Aug 28, 202415:33pending
An Interview With Taylor Kane, Founder and Executive Director of 'Remember the G...
Rare Care Podcast
Aug 19, 202411:16pending
An Interview With Dr. Jeffrey A. Cohen of the Cleveland Clinic on Cellular Thera...
Rare Care Podcast
Aug 15, 202410:26pending
An Interview With Maureen Juip, Secretary of the Friedreich's Ataxia Research Al...
Rare Care Podcast
Aug 5, 20248:59pending
An Interview With Jacquelyn Bainbridge, DPharm, of the University of Colorado, o...
Rare Care Podcast
Aug 1, 202412:21pending
An Interview With Michelle C. Werner, CEO of Alltrna
Rare Care Podcast
Jul 25, 202414:45pending
An Interview With Dr. Flavia Nelson of the University of Miami on Treatment Opti...
Rare Care Podcast
Jul 17, 202413:03pending
An Interview With Kevin M. Flanigan, MD, Director of the Center for Gene Therapy...
Rare Care Podcast
Jul 11, 202410:07pending
An Interview With Durresamin Khan, Pakistani Mother of a Boy With Duchenne Muscu...
Rare Care Podcast
Jul 1, 20248:32pending
An Interview With Jenny Huang, Mother of SMA Patient and MIT Math Whiz Benjamin...
Rare Care Podcast
Jun 27, 202415:01pending
An Interview With Omer Abdul Hamid, MD, of Nemours Children's Hospital in Orland...
Rare Care Podcast
Jun 18, 202414:03pending
An Interview With Pamela Gavin, New CEO of the National Organization for Rare Di...
Rare Care Podcast
Jun 10, 202414:24pending
An Interview With Patricia Weltin, Founder and CEO of Beyond The Diagnosis
Rare Care Podcast
Jun 3, 202418:00pending