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Rare Disease Advisor
Appears on 1 show we index, most recently in 20 episodes below.
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Recent appearances
An Interview With Dutch Neurologist Ewout Groen of SMA EuropeRare Care PodcastApr 20, 20268:52HostAn Interview With Dr. Jaime Moore on Obesity Medications and Neuromuscular DiseaseRare Care PodcastApr 13, 202614:12HostAn Interview With Dr. Natalie Truba on the Psychological Aspects of Gene TherapyRare Care PodcastApr 7, 202614:44HostAn Interview With Donna Shipp on Her IgG4-RD Patient JourneyRare Care PodcastMar 31, 202614:27HostAn Interview With Abby Bronson of Edgewise Therapeutics About Becker Muscular Dystrophy AwarenessRare Care PodcastMar 30, 202612:27HostAn Interview With Allison Moore, Founder and CEO of the Hereditary Neuropathy FoundationRare Care PodcastMar 23, 202610:06HostAn Interview With John Crowley, President and CEO of the Biotechnology Innovation OrganizationRare Care PodcastMar 17, 202614:24HostAn Interview With Dr. Hyun Kim, Director of the University of Minnesota's Interstitial Lung Disease ProgramRare Care PodcastMar 2, 202613:02HostAn Interview With Andrea Wilson Woods, Founder of Blue Faery, a Nonprofit That Advocates for Patients With Hepatocellular CarcinomaRare Care PodcastFeb 24, 202613:22HostAn Interview With Dr. Michael Schilsky of the Yale School of Medicine, and an Expert on Wilson DiseaseRare Care PodcastFeb 17, 202610:58HostAn Interview With Yen Chen, PhD, on Brain Fog Among People With SclerodermaRare Care PodcastFeb 11, 202612:24HostAn Interview With Dr. Aleksander Krag on Diagnosing and Treating Alpha-1 DiseaseRare Care PodcastFeb 2, 202612:21HostAn Interview With Vesna Aleksovska, a Rare Disease Patient Advocate in North MacedoniaRare Care PodcastJan 28, 202619:53HostAn Interview With Wes Michael, Founder of Rare Patient VoiceRare Care PodcastJan 21, 20267:34HostAn Interview With Katharine Provencher, Director of Patient Advocacy at IgG4Ward!Rare Care PodcastJan 12, 202611:09HostAn Interview With Cecilia Dueñas, PsyD, on Discrimination and Stigma She Encountered Before Getting Diagnosed With PBCRare Care PodcastJan 5, 202612:23HostAn Interview With Sickle Cell Disease Patient Advocate Golie-Lorenzo GreenRare Care PodcastDec 30, 202513:18HostAn Interview With Jana Monaco, a NORD Patient Ambassador From VirginiaRare Care PodcastDec 22, 202514:56HostAn Interview With Dr. Matthew Might on How AI Could Transform Genome-Guided MedicineRare Care PodcastDec 17, 202510:54HostAn Interview With Dr. Sarah Chang on the Patient and Caregiver Burden of TK2dRare Care PodcastDec 8, 202510:21Host