Rare Care Podcast
EN211 episodes
healthfitnessmedicine
Rare Disease Advisor's Rare Care Podcast features exclusive interviews with experts and stakeholders from the rare disease community.
Episodes (211)
An Interview With Dutch Neurologist Ewout Groen of SMA Europe
Rare Care Podcast
Apr 20, 20268:52failed
An Interview With Dr. Jaime Moore on Obesity Medications and Neuromuscular Disea...
Rare Care Podcast
Apr 13, 202614:12failed
An Interview With Dr. Natalie Truba on the Psychological Aspects of Gene Therapy
Rare Care Podcast
Apr 7, 202614:44failed
An Interview With Donna Shipp on Her IgG4-RD Patient Journey
Rare Care Podcast
Mar 31, 202614:27failed
An Interview With Abby Bronson of Edgewise Therapeutics About Becker Muscular Dy...
Rare Care Podcast
Mar 30, 202612:27failed
An Interview With Allison Moore, Founder and CEO of the Hereditary Neuropathy Fo...
Rare Care Podcast
Mar 23, 202610:06failed
An Interview With John Crowley, President and CEO of the Biotechnology Innovatio...
Rare Care Podcast
Mar 17, 202614:24failed
An Interview With Dr. Hyun Kim, Director of the University of Minnesota's Inters...
Rare Care Podcast
Mar 2, 202613:02pending
An Interview With Andrea Wilson Woods, Founder of Blue Faery, a Nonprofit That A...
Rare Care Podcast
Feb 24, 202613:22pending
An Interview With Dr. Michael Schilsky of the Yale School of Medicine, and an Ex...
Rare Care Podcast
Feb 17, 202610:58pending
An Interview With Yen Chen, PhD, on Brain Fog Among People With Scleroderma
Rare Care Podcast
Feb 11, 202612:24pending
An Interview With Dr. Aleksander Krag on Diagnosing and Treating Alpha-1 Disease
Rare Care Podcast
Feb 2, 202612:21pending
An Interview With Vesna Aleksovska, a Rare Disease Patient Advocate in North Mac...
Rare Care Podcast
Jan 28, 202619:53pending
An Interview With Wes Michael, Founder of Rare Patient Voice
Rare Care Podcast
Jan 21, 20267:34pending
An Interview With Katharine Provencher, Director of Patient Advocacy at IgG4Ward...
Rare Care Podcast
Jan 12, 202611:09pending
An Interview With Cecilia Dueñas, PsyD, on Discrimination and Stigma She Encount...
Rare Care Podcast
Jan 5, 202612:23pending
An Interview With Sickle Cell Disease Patient Advocate Golie-Lorenzo Green
Rare Care Podcast
Dec 30, 202513:18pending
An Interview With Jana Monaco, a NORD Patient Ambassador From Virginia
Rare Care Podcast
Dec 22, 202514:56pending
An Interview With Dr. Matthew Might on How AI Could Transform Genome-Guided Medi...
Rare Care Podcast
Dec 17, 202510:54pending
An Interview With Dr. Sarah Chang on the Patient and Caregiver Burden of TK2d
Rare Care Podcast
Dec 8, 202510:21pending
An Interview With Rheumatologist Jinoos Yazdany on the Dangers of Artificial Int...
Rare Care Podcast
Dec 3, 202516:43pending
An Interview With Dr. Barry Byrne, Director of the UF Powell Gene Therapy Center
Rare Care Podcast
Nov 24, 202512:27pending
An Interview With Rheumatologist Eric Matteson, Winner of the ACR's 2025 Preside...
Rare Care Podcast
Nov 19, 202516:34pending
An Interview With New Mexico Patient Ambassador Karen Smoot of the Pulmonary Fib...
Rare Care Podcast
Nov 11, 202515:50pending
An Interview With Gabriela Romanow, Founder of Rare Vision, a Project That Helps...
Rare Care Podcast
Nov 4, 20258:23pending
An Interview With Lisa Shea, Director of Global Patient Advocacy and Engagement...
Rare Care Podcast
Oct 29, 20257:35pending
An Interview With Dr. Nicole Lamanna, Leukemia Specialist at Columbia University...
Rare Care Podcast
Oct 22, 202511:33pending
An Interview With Dr. May Lee Tjoa, Maternal and Fetal Immunology Expert at John...
Rare Care Podcast
Oct 15, 202511:12pending
An Interview With Dr. John Mascarenhas, Professor at New York's Icahn School of...
Rare Care Podcast
Oct 10, 202517:04pending
An Interview With Catherine Miller, PharmD, of Intellia Therapeutics on an Exper...
Rare Care Podcast
Oct 1, 202513:26pending
An Interview With Dr. Shoshana Revel-Vilk, Director of the Gaucher Unit at Israe...
Rare Care Podcast
Sep 24, 202516:14pending
An Interview With Nikki McIntosh, Founder of Rare Mamas and SMA Patient Advocate
Rare Care Podcast
Sep 16, 202511:27pending
An Interview With Dr. Jennifer Brown, Director of the CLL Center at Dana-Farber...
Rare Care Podcast
Sep 8, 202513:29pending
An Interview With Michio Hirano, MD, a Global Expert on Thymidine Kinase 2 Defic...
Rare Care Podcast
Sep 3, 20258:48pending
An Interview With Dr. Pradeep P.A. Mammen on Females With Duchenne Muscular Dyst...
Rare Care Podcast
Aug 27, 202512:49pending
An Interview With Kfir Oved, CEO of Canopy Biotech, Which is Pursuing Novel Trea...
Rare Care Podcast
Aug 18, 202515:36pending
An Interview With Ileen Colin del Río, President of Duchenne Mexico
Rare Care Podcast
Aug 13, 202516:10pending
An Interview With Aspiring DJ Yuva Gambhir
Rare Care Podcast
Aug 5, 202513:41pending
An Interview With Dr. Richard Nowak, Director of the Yale Myasthenia Gravis Clin...
Rare Care Podcast
Jul 28, 202513:39pending
An Interview With Robert Steen of Norway on the Award-Winning Movie 'The Remarka...
Rare Care Podcast
Jul 23, 202512:29pending
An Interview With Dr. Carolina Barnett-Tapia, Associate Professor of Neurology a...
Rare Care Podcast
Jul 14, 202513:20pending
An Interview With Dr. Angela Vincent, Winner of the Myasthenia Gravis Foundation...
Rare Care Podcast
Jul 8, 202513:25pending
An Interview With Dr. Daniel Grant, VP and Global Program Head at Novartis
Rare Care Podcast
Jul 2, 202513:14pending
An Interview With Ashley Stanley-Copeland, MD, of Dell Children's Medical Center...
Rare Care Podcast
Jun 26, 202514:48pending
An Interview With Ashley Stanley-Copeland, MD, of Dell Children's Medical Center...
Rare Care Podcast
Jun 26, 202514:48pending
An Interview With Dr. Sithara Ramdas on Neonatal and Juvenile Myasthenia Gravis
Rare Care Podcast
Jun 20, 202511:55pending
An Interview With Lyza Weisman on Living With Spinal Muscular Atrophy
Rare Care Podcast
Jun 18, 202515:15pending
An Interview With Allucent's Marcus Delatte, PhD, on Using Cannabinoids to Treat...
Rare Care Podcast
Jun 13, 202510:31pending
An Interview With Lucy Culp, VP of State Government Affairs at the Leukemia & Ly...
Rare Care Podcast
Jun 9, 202511:14pending
An Interview With Amyloidosis Patient Dan Lier, a Partner With the Nonprofit Gro...
Rare Care Podcast
May 26, 202510:47pending