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Lily's Fight: Non-Epileptic Seizure Disorder

About this episode

Lily Sillis, a 23-year-old from Blackburn, Lancashire, experienced a sudden health crisis, losing her independence overnight. After initial blood tests offered no answers, she was diagnosed with non-epileptic seizure attack disorder, functional neurological disorder, and functional movement disorder. These conditions cause spasms, tremors, paralysis, and involuntary movements, leaving her unable to perform daily tasks. The family is fundraising for additional treatments as Lily navigates this unpredictable journey.

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Lily's Fight: Non-Epileptic Seizure Disorder

Leicester News Today | 2 Min News | The Daily News Now!

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Full transcript

Leicester News Today | 2 Min News | The Daily News Now!Lily's Fight: Non-Epileptic Seizure Disorder. Machine-transcribed; use the interactive transcript above to jump the player to any line.

You're listening to Lester News today, powered by the Daily News Now. A 23-year-old woman from Blackburn Lancashire named Lily Silas faced a terrifying health crisis just weeks ago. On February 10th, while putting on her makeup, she noticed her face spasming every time she touched it. Soon after calling for medical advice, her face drooped severely to one side, and she lost the ability to speak clearly. Her condition worsened rapidly over the next couple of days. Normal blood tests at the emergency room offered no answers, but back home, full facial sagging hit hard. By February 12th, she suffered her first seizure, followed by many more, sometimes up to 20 a day, leaving her paralyzed for hours afterward. Before this, Lily was super active, running her own dog walking business, hitting the gym regularly, and loving outdoor adventures with animals. Now, everyday tests like walking, eating, or even using the bathroom require full help from carriers of family, shattering her independence overnight.

Doctors at Roro Press in Hospital ran tests, including an EEG scan, and diagnosed her with non-evaleptic seizure attack disorder, along with functional, neurological disorder, and functional movement disorder. These involve the brain's struggling to send signals, causing spasms, tremors, paralysis, and involuntary movements that can last hours. Her mom Sarah says it's heartbreaking to see her daughter go from self-reliant to needing constant care, with no quick fix in sight. The family is fundraising for extra treatments to help Lily manage day by day, as the unpredictable episodes remain scary and exhausting. This episode is supported by our sponsor. Some people meditate. I just lay down and press play. S-O-L-I-SoliPillo.com

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