Susan Koen

Author and advocate

Susan Koen is an author and advocate for individuals affected by Genetic Frontotemporal Dementia. Her book, 'Dancing in the Face of Death', is a tribute to her late partner Barbara, who struggled with the disease. Susan's work aims to raise awareness and provide support to those affected by FTCD. She has spoken publicly about her experience and has become a vocal advocate for research and care. Susan's dedication to...