Leni Forster

Patient advocate for Sanfilippo syndrome

Leni Forster is a patient advocate for Sanfilippo syndrome. She is a young girl who has been living with the disease since birth. Leni is an inspiration to many, and her advocacy work has helped raise awareness about the disease and the need for gene therapy. She is a strong advocate for her own health and well-being, and is working to make a difference in the lives of others with Sanfilippo syndrome.