Gus Forrest

Father and advocate for rare disease research

Gus Forrest is a father and advocate for rare disease research. He is the husband of Emily Forster and the father of Leni, who has Sanfilippo syndrome. Gus is actively involved in fundraising and advocating for gene therapy and government research support. He is also a strong advocate for newborn screening to catch these conditions sooner. Gus is a passionate advocate for his daughter's health and well-being.