Emily Forster

Mother and advocate for rare disease research

Emily Forster is a mother and advocate for rare disease research. She is the wife of Gus Forrest and the mother of Leni, who has Sanfilippo syndrome. Emily is actively involved in fundraising and advocating for gene therapy and government research support. She is also a strong advocate for newborn screening to catch these conditions sooner. Emily is a passionate advocate for her daughter's health and well-being.