Jesy Nelson's Fight for Twin Daughters with SMA

0:00Today is March 19th. Here's what's trending in entertainment. Jay-Z Nelson, the former little mix singer, shared a heartfelt update about her nine-month-old twin daughters, Ocean and Story. The 34-year-old welcomed the girls in May, with her ex-pianse, Zion Foster, but revealed in January, they both have spinal muscular atrophy type. 1. The most severe form of this genetic muscle-weakening disease. The condition affects motor nerve cells in the spinal cord, leading to progressive muscle wasting that can impact breathing and swallowing. Without treatment, babies with type 1 often do not live past two years. Jay-Z has been open about their journey on social media, and this week she picked up custom leg splints to help straighten their pointed feet. It hit GZ hard, calling it another tough reminder of their struggles, though she found some joy in the tiny splints decorated with hearts for story. Butterflies for Ocean. The twins were born prematurely at 31 weeks after facing twin-to-twin transfusion syndrome

1:02in the womb. A rare complication from sharing one, Pocenta. Jay-Z remains determined, continuing to film her prime video series to document their story and push for change. She's advocating for the NHS to add spinal muscular atrophy screening to the standard newborn heel prick test, which costs just one pound per baby, and could enable earlier treatment. Meanwhile, Jay-Z is hopeful her resilient girls will beat the odds with ongoing care. She's focused on making the most of every moment while fighting for better detection to help other families. The daily news now is made possible with support from our sponsor. No need to switch positions. The sound is already where your head is. S-O-L-I-SOLY-PILLOW.com