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newsApr 23, 20261:43

Vanellope's Miracle: A Rare Heart Journey

About this episode

Vanellope Hope Wilkins, born with a rare heart condition, defied medical odds and became the only known survivor in the UK with ectopia cordis. After multiple surgeries, her team achieved another world first by rebuilding a protective cage around her heart using her own ribs. Now eight, Vanellope faces additional challenges including epilepsy, partial sight loss, ADHD, autism, and being non-verbal. Her mother, Naomi, advocates for increased care to ensure her daughters safety at home, as the current setup is struggling to keep up with Vanellopes growing needs. The local health board and council are working to tailor her care package to her evolving requirements, aiming to keep her in her own home.

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Vanellope's Miracle: A Rare Heart Journey

Leicester News Today | 2 Min News | The Daily News Now!

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Leicester News Today | 2 Min News | The Daily News Now!Vanellope's Miracle: A Rare Heart Journey. Machine-transcribed; use the interactive transcript above to jump the player to any line.

Benella P. Hope Wilkins made medical history right from birth in 2017 when she came into the world with her heart outside her chest, A. Super rare condition called Ectopia Cordis. She's the only known survivor in the UK from that. Docs at Glenfield Hospital did three surgeries as a newborn to tuck her heart back inside and she beat odds stacked way against her with less than A, 10% survival chance. As forward to last year 8-7, her team pulled off another world first, rebuilding a protective cage around her heart using her own ribs. During surgery at Lester Royal infirmary, that groundbreaking move let her ditch the hard chest brace she's worn her whole life to shield that thin skin layer over her heart. Now 8 years old, Benella P. Deals with epilepsy, partial sight loss, ADHD, autism, and she's nonverbal so her days and nights run on one to one. Bear is pretty much around the clock. Her mom Naomi, raising four kids total in Nottingham, says the care set at works, but quality

slipping as Benella P. gets stronger and her behaviors. Ramp up. She can't be left alone for a second. Naomi's pushing hard for two carers during daytime hours to keep things safe at home, stressing she's no superhuman and won't ship her daughter off to. Residential care. The local health board and council say they review her package often, tailoring it to needs with family input, always aiming to keep kids like her, safe in their own homes. Surgeons call it a teen win that move mountains, and with Benella P. thriving post-op, her story spotlights how far innovation and family grit can go, and facing the impossible. From your city, powered by AI, this is Lester News today.

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