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newsMar 21, 20261:27

Regan's Marathon Run: CF & Aussie Visa Hurdles

About this episode

Regan Sparks, a 23-year-old with cystic fibrosis, has seen her life transformed by the NHS-approved drug Trikafta. Once limited by her condition, she now trains for marathons and travels solo. However, her dream of a working holiday visa in Australia was dashed due to the high cost of Trikafta, which exceeds the health cost threshold for visas. Despite her improved health and willingness to cover her own medical expenses, Australian officials deny her application, citing the need to protect public health funds for citizens. Regans story sheds light on the ongoing debate about inclusive travel policies for those with chronic conditions.

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Regan's Marathon Run: CF & Aussie Visa Hurdles

UK News Today | 2 Min News | The Daily News Now!

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Full transcript

UK News Today | 2 Min News | The Daily News Now!Regan's Marathon Run: CF & Aussie Visa Hurdles. Machine-transcribed; use the interactive transcript above to jump the player to any line.

On March 21st, 23-year-old Regan Sparks from Essex has cystic fibrosis, a genetic condition that once limited her life expectancy to her. Early Fuguerys. That changed in 2020 when the drug Tricofta became available through the NHS, dramatically boosting her health and opening up new, possibilities like getting a job, finding a partner and taking up running. Before the medication, Regan faced a tough childhood with frequent hospital stays and surgeries, starting just one day after birth. Now, she trains for marathons, including a planned run in New York later this year, and recently completed a solo backpacking trip through southeast, Asia without any visa issues. Regan dreamed of a working holiday visa in Australia, a popular spot for young brits, but her application got rejected twice. The problem is, Tricofta cost $250,000 a year, well over the $86,000 Australian dollar health cost, threshold for visas.

She feels frustrated, arguing she's as healthy as anyone now, and willing to cover her own medical expenses or sign a waiver. A migration agent notes Australia's rules prioritized protecting public health funds for citizens. Meanwhile, Australian officials review these health requirements case-by-case and are considering updates after consulting effective groups. Regan's story highlights ongoing debates about inclusive travel policies for those with chronic conditions.

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