
Everton's Rainbow Stadium for Rupert's Rare Condition
About this episode
Eight-month-old Rupert from North Wales, diagnosed with a rare condition causing breathing struggles, inspires a fundraiser. His dad, David, a police officer and Everton fan, walks 22 miles to raise awareness and funds for potential treatments in the US.
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UK News Today | 2 Min News | The Daily News Now! — Everton's Rainbow Stadium for Rupert's Rare Condition. Machine-transcribed; use the interactive transcript above to jump the player to any line.
On March 3rd, a month old Rupert from North Wales faces a rare condition called alternating hemiplegia of childhood, which strikes just 1 in a million kids and causes breathing struggles at times. His dad, David, a dedicated Everton supporter and police officer, launched the Rupert Rainbow's fundraiser to boost awareness and fund treatment. Last week, Everton lit up their stadium in rainbow colors before a big match, drawing eyes across Liverpool. Doctors spotted issues like eye flickering and body stiffness just weeks after his birth, running tests at local hospitals before confirming the diagnosis in January. With no cure available, the family manages symptoms through meds and clothes monitoring, as triggers like excitement, heat, cold, or even a cold can. Spark seizures or breathing stops, the parents, who have two other sons, initially felt isolated after the news, but they've praised the NHS teams in North Wales and Liverpool for there.
Life-saving care, including an air ambulance ride, after Rupert stopped breathing during a store visit. His mom even performed CPR once, and now he sleeps with heart and oxygen monitors every night. David is pushing to raise 1.5 million pounds for potential treatments in the United States, where research shows promise. Despite his own cancer remission and nerve damage in his feet, he set for a 22-mile walk from home in Broughton to Everton Stadium on. March 21st, ahead of their game against Chelsea, community backing from the club's gesture to donations rolling in, gives the family real hope as they gear up for whatever steps come next to help. Rupert thrive. Rupert thrive. Rupert thrive. Rupert thrive. Rupert thrive. Rupert thrive. Rupert thrive. Rupert thrive. Rupert thrive. Rupert thrive. Rupert thrive. Rupert thrive. Rupert thrive.
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