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ALS Warrior's Final Message: Live Big

About this episode

Darin Nakakihara, diagnosed with ALS in November 2023, shared his journey on social media, building a community of 148K followers. He filled a gap in online support, offering raw insights into living with ALS. His story inspired thousands, and in his final message, he thanked his community and urged them to live life to the fullest.

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ALS Warrior's Final Message: Live Big

Entertainment & Celebrity News Today | 2 Min News | The Daily News Now!

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Full transcript

Entertainment & Celebrity News Today | 2 Min News | The Daily News Now!ALS Warrior's Final Message: Live Big. Machine-transcribed; use the interactive transcript above to jump the player to any line.

On April 23rd, Dara Nakakihara shared his battle with Amiotrophic lateral sclerosis, or ALS on social media after his diagnosis back on November 9th 2023. He started posting about the daily grind of the disease, building a community of 148,000 followers who tuned in for real talk, on living with it. He noticed the big gap online. No one was breaking down the raw everyday changes, like losing mobility fast or the mental shifts. So he turned his page into a lifeline, not just for folks with ALS, but their families too, offering straight up support as his condition worsened. His story hid hard, inspiring thousands who felt seen and less alone. In a recent interview, he talked about how it evolved from personal notes to a movement, pulling people together beyond screens. Now he's posted what looks like his final message, full of thanks to everyone who held him up through prayers, laughs, and messages. He gave a special shout out to his wife, his rocking caregiver, and asked the community to keep

lifting his daughters too. ALS took its toll physically, but he made it clear his spirit stayed strong. He fought, loved, deep, and left at peace. His last words, live big, hit that trip, call your people, chase sunsets, hug tighter, and grab every bit of joy you can. I'm Cory with the story, and you've been listening to Entertainment and Celebrity News today, AI-powered pop culture coverage.

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